Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 03-01-2014, 11:25 PM #1
Bipedal Primate's Avatar
Bipedal Primate Bipedal Primate is offline
Junior Member
 
Join Date: Feb 2014
Posts: 32
10 yr Member
Bipedal Primate Bipedal Primate is offline
Junior Member
Bipedal Primate's Avatar
 
Join Date: Feb 2014
Posts: 32
10 yr Member
Poll Learning how to be a self-advocate at Hospital and Doctor Appointments

After each Doctor visit I ask for all copies of any diagnostic results for my personal records.

I research any questions I want to ask my Neurologist before our appointment and try to educate myself as much as I can. Thank G-d for THIS SUPPORT GROUP.

I hand carry ALL of my medical history and documentation to every new Doctor I see. This way I can present the "proof" to their face, as needed.

I take:

both my MRI's and CT CHEST SCANs-- these are the original film given to me at the hospital after I had them done. They are big and awkward to carry around but worth it. I also have them emailed to me.

My current physical check-up results with all my recent blood analysis and lab work done by my gynocologist and GP.

A copy of my AChR antibody Blood test that is POSITIVE

Before and After photos of my ptosis
{{{Funny enough, so far the most useful "evidence" are photos of my face before and after taking Mestiton! It is clear in my pictures that before Mestiton my ptosis is really bad and one hour after taking 60mg my ptosis is better.}}}

The doctors CAN NOT deny what is in front of their face ---- well I take that back, some sadly can!
Bipedal Primate is offline   Reply With QuoteReply With Quote

advertisement
Reply

Tags
doctor visits, myasthenia gravis, self-advocacy


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
SS doctor appointments Biologybrain Social Security Disability 1 08-16-2013 02:33 PM
My doctor appointments anon22217 Traumatic Brain Injury and Post Concussion Syndrome 10 05-16-2013 08:44 PM
Had 3 new pain doctor appointments....new ideas firegirl Reflex Sympathetic Dystrophy (RSD and CRPS) 12 08-09-2011 06:55 PM
Anyone know this doctor or hospital? Bassetcase Trigeminal Neuralgia 5 11-28-2010 08:39 PM


All times are GMT -5. The time now is 06:34 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.