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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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01-09-2011, 10:27 AM | #1 | ||
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This is a book by a woman who was eventually diagnosed with an atypical form of myasthenia gravis, after years of being told her illness was psychosomatic. It was so severe that she became a quadriplegic, and actively pursued euthanasia. Her book is subtitled "A Journey into Uncertainty and Prejudice in Medical Diagnosis." http://www.cornellpress.cornell.edu/...taf?ti_id=6014
I hope this doesn't discourage anyone, but I post it here because I know it will be of interest. Also, I really do think that books like this are heralds of change in the medical system. The success of this book at least means that people are willing to listen. My thoughts are with those of you who are still fighting for a diagnosis. Don't give up. Abby Last edited by Stellatum; 01-09-2011 at 10:28 AM. Reason: forgot the link |
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"Thanks for this!" says: | Annie59 (01-09-2011), AnnieB3 (01-10-2011), craftyRCC (01-10-2011), DesertFlower (01-10-2011), ginnie (02-13-2014) |
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