The ENT I just saw put a scope into throat and said he didnt see anything. But to me that means no growths, obvious things like tumors, sores or the like. You cant see weakness per se. He did ask me to make the EE sound 2 times. He cant see what happens in my throat after I have pushed my throat thru a long talk or more than one. It does seem to have some sort of lockup at a certain point of me pushing. But I have this in other areas after high use.

He ordered a swallow test with contrast and ordered an MRI of my thoat- neck area with contrast. He did a good intake with me as far as him and his nurse asking questions so he knows he's not necessarily gonna see something IN my throat at that minute. I did go into breathing distress in a more obvious way in front of him. But I have found that my voice is getting softer, quieter cause I just cant push it out anymore in a normal way.

Annie59

thanks Annie59 for your feedback. some people with bulbar ALS are diagnosed by ENTs because weakness is easily seen via the nasal scope, especially weakness in vocal cords. I believe this is why ENTs ask us to say EEEE when the scope is administered. my ENT said the "flap" (for the lack of a better term) that would malfunction and allow food to go up my nose was functioning normally. but i told him that the feeling was intermittent, and he said that it could very well be and that it was just functioning properly at the time he checked it. the diffuse muscle twitching plus the swallowing scares me, but i've had three standard EMGs over two years that yielded normal results, so there's no signs of denervation, which i try to remind myself when things get bad. i actually saw my ophthalmologist yesterday who recognized my ptosis but wasn't sure if it could be caused by MG or another neurological condition. She said to raise the issue with my neurologist, which I'll do on my next appointment.

How long did it take for your MG dx? How often do you see your neuro?

Thanks again for your help!