I decided I am going to see the local neuro Dr Risk. He has no history with me and no access to the university records that have affected and still affect any outcome there other than my wonderful pulmo-breathing doc.

I will probably have to change my family doc because he flat out said he wouldnt refer me to this neuro. This neuro is the one I mentioned who is in a lone practice not with the other neuros in town. He is kinda unique. He is the only doc in the area who would treat someone with chronic fatigue and take it seriously.

The up side of this is that I think I can get a lot better quality of life if I can just get a neuro that will care! One that will work on my mestinon and give me something for the diareah so I can take lareger doses. That will help vision and swallow. My life will become about living and not about constant appointments to get the university to believe I have MG. I dont deserve that.

Also I have no doubt he will prescibe the injectable mestinon to get me thru the mouth and eye surgery that HAS to be done. My neuro wont help me with even that. I have never met a doctor so cold and detached. It took them a number of years to find a neuro to come there and work. I wonder why. And this is the person they got!

I remembered this morning that my breathing doc when he did the pulmonary exercise test in Feb 08 and determined that what I was experincing was NOT fatigue like one would see in chronic fatigue. It was my muscles or heart and my heart had been thoroughly and repeatedl tested. So not heart. He said I needed a GOOD neuro muscle doc and there was not one at the university. The only addition since that time to the univeristy is the neuro I have now. She wont agree to do any tests he suggests except the muslce biopsy. AS my daughter said to do that just to prove I dont have it would be cruel. And to do it and not do other less invasive tests is cruel. She hates this neuro.

Annie59