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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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On 12/20, I was late for my MRI appointment that should have began at 3:45 pm. As a result, I had to wait over two hours for them to fit me into the schedule.
It was shortly after 6 pm, when the MRI began, which was done WITHOUT contrast. So, I don't check my email for about a week, but when I do I noticed that my doctor has sent me an email on that very day at 12/20 at 6:01 pm. I go on my HMO website and nervously click on the email, knowing non-emergency MRIs should take a few weeks to review, not really realizing the signsigficance of the date on the email, until I was in bed thinking about the numbers. (Yes, I have a weird quirk about numbers in that I rarely forget significant numbers.) Anyway, I noticed that the email from doctor was dated the on the day of the MRI and before it was performed. I initially thought he was getting on me for not making my appointment or just reminding me about it, but no. . . The message from my doctor follows: There is no interval change on MRI of chest. Our radiologist think it's likely thymic remnant or benign thymic hyperplasia. End of message. Okay to state the obvious, either my doctor is a psychic, or there is some kind of mistake. With that stated: I had an MRI without contrast. How can they know whether or not the MRI result showed a benign thymic hyperlasia? I know many of you will contest that one can never know if a tissue is benign unless a biopsy is conducted, and I an a believer as well. Anyway. . . What do I do? Is this an error on the radiologist or neuro-muscular part? As if I didn't have to worry about enough, now, I wonder how accurate were my tests. To recap everyone on my roller coaster, I was first told I could not possible feel anything inside my body, even though I continue to declare I felt something around my chest area and even experienced a traumatic event of waking up one morning fighting to breathe. After the lung doctor ordered up a CT scan, it showed I had an enlarged thymus. I was told it had a "remnant" then later told the tissue was 2.5 cm and last count 5.7 cm. At first, the doctor wanted to do a thymectomy, then he did a 180 in about a month's time and said I didn't need surgery. I need answers, because I see the doctor somewhere around Jan. 12. Do I email him, highlighting the mistake, because it is a mistake? I saw the date on the email. In order for him to have written and sent that email, he would have received the results in the five o'clock hour, since the email was sent at 6:01 -- the hour I had my MRI! Interesting note: I guess it was a God send that I missed my appointment, because it has opened up my eyes. Otherwise, I would not have questioned the results. Plus, there is another little bit of info. The technician who ran the MRI did not know where the thymus was located on the body. She did wait and ask and the other tech told her it was located in the chest. He then told her where to shoot from above the collar bone and end at the lower ribs. I guess it is better to ask than to do something stupid, but I still need to get to the bottom of this. I need everyone's suggestions. |
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