[Annie59]

Today I got my courage up and read the Neuro report form the guy I say a year ago for autonomic dys/POTS. I had read only the summary and it was so ridiculous I didnt read the rest cause honestly I was scared of what else he had said. OH BOY WHAT HE WROTE ABOUT ME!! Now this last year all makes sense. This guy took almost every word out of my mouth and twisted it. He even slammed the the neuro, a very talented movement specialist neuro who was my first neuro cause they had no muscle person (and my internist said she was a good doc). He said that the 'fainting like' incidents I was seeing him for fit with what he read that I was seen for that day!! In other words he thought I had just fainted that day in the shower not had a myasthenic crisis which that doc said I was having and admitted me. He made it sound psych related. She used the word psychgenic repeatedly. I regret the wasted time and trips and hope for my daughter who is so burned out. I gave her a copy of this report and the last one from my pulmo. Putting them side by side you really see the extreme negativity and really lack of professionialism from that neuro, even bias I suggest.

If I had read this report from this doc I would have known there was no reason to continue trying to get diagnosed at the university. It was right after I saw this guy that I did the mestinon challenge with my pulmo that showed obviuos results in their beloved black and white terms. Good timing. I will keep my pulmo there and likely my endo as that is the only place there
is Endos locally.

I think I am in a good place for tomorrow. I just hope my daughter can be available to her fears not her anger.

Annie59