by the way how was your recovery path? how much did it help you so sar? and how long ago was ur thymectomy?

Well that all sounds pretty good. They appear to have it down in chicago. UNC had it down pretty good as well. Hope you get out soon man.

I had my thymectomy in October of 09. I had a rough 6 months after the surgery, my mg got mad worse, but now it's getting slowly better- I'm on 14 pills a day and ivig every month but I think I'm closer to out of the woods than not.


Hope ur feeling good

so youre just now feeling the effects a year and a half after your surgery?

Yessir. First 6 were deadly, middle six alright, last 6 pretty well. It also could be imuran kicking in. Ill hold out hope for both

me too. i hope this thing slows down for you some. whats ur reaction to IVIG cuz i feel fricken awesome even after having the surgery 2 days ago and i hope this feeling never goes away again

Thanks dude. I hope you have a good recovery. I know a 17 yr old
Who had the thymectomy maybe 6 months ago and he is already in remission so there are definitely some quick success stories out there- knock on wood.

The ivig isn't as good as the plasmapheresis I dont think but that's just me. It does make it so that I can work out so I'm not complaining about it at all but it's quicker maybe w plasmapheresis.

Hope you got to get out today- it's impressive how fast your getting out, compared to my stay only a year and a half ago! Crazy. Be well man

I actually just got home and i went out to dinner on the way home from the hospital. so im pretty decent right now but its about time to just chill for a few days thats for sure

Yeah dude you don't want to over do it, that's what I did, be careful please

yea the plan for the next few weeks is video game and more video games so im not lookin to overdo it at all