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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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02-06-2011, 12:36 PM | #1 | |||
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Brandon- glad your doing well man (as well as you can be haha your in the icu). Sounds like they're taking pretty good care of you, and all the tubes and ivs sound all normal from what I had. I bet you'll be out of there in no time- make sure to keep your lungs strong. I messed that part up and one collapsed.
Keep strong man |
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02-06-2011, 02:14 PM | #2 | ||
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02-06-2011, 06:06 PM | #3 | |||
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I had my thymectomy in October of 09. I had a rough 6 months after the surgery, my mg got mad worse, but now it's getting slowly better- I'm on 14 pills a day and ivig every month but I think I'm closer to out of the woods than not. Hope ur feeling good |
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02-06-2011, 07:29 PM | #4 | ||
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02-06-2011, 08:00 PM | #5 | |||
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02-06-2011, 09:25 PM | #6 | ||
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me too. i hope this thing slows down for you some. whats ur reaction to IVIG cuz i feel fricken awesome even after having the surgery 2 days ago and i hope this feeling never goes away again
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02-07-2011, 05:56 PM | #7 | |||
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Thanks dude. I hope you have a good recovery. I know a 17 yr old
Who had the thymectomy maybe 6 months ago and he is already in remission so there are definitely some quick success stories out there- knock on wood. The ivig isn't as good as the plasmapheresis I dont think but that's just me. It does make it so that I can work out so I'm not complaining about it at all but it's quicker maybe w plasmapheresis. Hope you got to get out today- it's impressive how fast your getting out, compared to my stay only a year and a half ago! Crazy. Be well man |
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02-06-2011, 02:15 PM | #8 | ||
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