OK, so this sounds silly, but for the past two and a half weeks I have been assigning a number from 1 to 10 for how much activity I did each day, and a number for how bad my symptoms were. I made a line graph, and the correlation is really striking. Of course I knew that when I do a lot, I'm weaker the next day, and so on, but I really had no idea how strong the correlation was. The higher my "activity" number, the longer it takes my "symptoms" number to settle back down.

I thought I had a good sense of how activity affected my symptoms, but I was struck by how much stronger the connection was than I'd realized.

This is very helpful for me, because on the days I'm taking it easy, I sometimes wonder whether I'm just using my illness as an excuse to be lazy. Now I have "hard evidence" to remind myself.

Abby

This is one of the paradoxes of this illness. once you learn how to balance your activity in a way that your symptoms are better controlled, you and others think that you can do much more, as you are doing so well...

I have found it the hardest when there was some true improvement (due to a relatively effective medication), and I could in fact do more, but not that much more....

And I have a neuro who thinks that MG is either mild or an MG crisis.

I'm glad you figured that out, Abby. There's no point of being hard on yourself, thinking you could or should be doing more when all it does is tank you that much more a day or two later. MG has been the absolute hardest thing to manage in my life. It's a problem I can't solve and it ticks me off. ;)

I encourage you to do a "sticky" post once you have this journaling down to a science, which it sounds like you nearly do.

Annie

I need to learn to remind myself, it seems like every time I feel good I end up pushing myself too far. Hopefully I have learned my lesson by now. :rolleyes:
Thanks for the reminder.