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Old 02-25-2011, 10:16 AM #11
trumandem trumandem is offline
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Thanks! I only had the pred 4 days when I begged off. Mestinon is whatl I have taken. My droopy lid appeared the day my retinal specialist checked me out; he marked it down, but did not recognize it (I am way older than most females who get mg). The local opthamologist was planning an eyelid operation, but my family doctor made one test and said '3rd nerve dysfunction.' Could not get a neuro appt with the one I wanted, so went to G'ville. Last visit I said one eye was painful when moved; he said 'where?'; I said around muscles, I think. So he says, "Your eyes have no muscles." The end; I am waiting to see my original choice of neuros. The eye symptoms have either remissed or I have learned how to control focus; I was an undiagnosed amblyopic for 60 years, so am just back to ground zero.

Have much hope for next neuro; saw him before for leg pain; family doctor likes him too. The only thing current dr. has suggested besides mestinon (caused leg cramps, but I found a remedy) is steroids or 'chemotheraphy.' He never mentioned the immuniglobulin injection .
Good luck to you too, Harriet
ps--daughter's pa-in -law in MI has done well for around 10 years; is on net a lot, so I suppose vision is not terrible.
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Old 02-25-2011, 06:55 PM #12
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My mother got Dx at age 85. A neuro-opthamologist was the first to say I had MG. I think they are better than most neuro at seeing the symptoms. I think Prednisone is very dangerous for us older folks.
Mike

Quote:
Originally Posted by trumandem View Post
Thanks! I only had the pred 4 days when I begged off. Mestinon is whatl I have taken. My droopy lid appeared the day my retinal specialist checked me out; he marked it down, but did not recognize it (I am way older than most females who get mg). The local opthamologist was planning an eyelid operation, but my family doctor made one test and said '3rd nerve dysfunction.' Could not get a neuro appt with the one I wanted, so went to G'ville. Last visit I said one eye was painful when moved; he said 'where?'; I said around muscles, I think. So he says, "Your eyes have no muscles." The end; I am waiting to see my original choice of neuros. The eye symptoms have either remissed or I have learned how to control focus; I was an undiagnosed amblyopic for 60 years, so am just back to ground zero.

Have much hope for next neuro; saw him before for leg pain; family doctor likes him too. The only thing current dr. has suggested besides mestinon (caused leg cramps, but I found a remedy) is steroids or 'chemotheraphy.' He never mentioned the immuniglobulin injection .
Good luck to you too, Harriet
ps--daughter's pa-in -law in MI has done well for around 10 years; is on net a lot, so I suppose vision is not terrible.
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Old 02-28-2011, 04:34 PM #13
mnleona mnleona is offline
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I'd like to hear from other old folk who have MG. I am 89 and have had Mg for nabout 13 years. Started as ocular and advanced to general after having been given ciprofloxacin. I take 60 mg mestinon 5x a day, but it is not nearly enough. It takes about an hour to kick in and an hour to decline. So I dont get enough help from it. My neurologist wont increase it. I have also had cellcept and IVIg which I couldnt tolerate. My digestion is extremely sensative and it seems to be intolerant of vitamins.I need a suggestion for a good sleeping pill. I am extremely fatigued, and my eyes are not cooperative.
My husband who is 91 is one of my caretakers and he suffers from neuropathy in his feet. Elly
My husband is 76 and was diagnosed last August. We are still trying to find out why he has trouble breathing sometimes.
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