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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Grand Magnate
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I'm sorry to hear that, Mike. You are really lucky to have such a great partner. If she does have MG, it will, unfortunately, MAKE her listen.
While I adore the doctor who did the SFEMG, he's not an out of the box risk taker. Unless things look like an MG algorithm, he's not likely to declare that it's MG. I'm sure he has his reasons for being that way. There's something very empowering about seeing test results and doctor notes in black and white. Again, they often don't tell patients everything. She has the right to get care, if she has MG. Normal people do not have eyelids that go up and down. Or positive antibody tests. ![]() I wish her the best, whatever she decides to do. It's her life. Take care. Annie |
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"Thanks for this!" says: | pingpongman (02-21-2011) |
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