Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
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Old 02-21-2011, 10:55 AM #1
Pinkyt177 Pinkyt177 is offline
Junior Member
 
Join Date: Feb 2011
Location: Central Illinois
Posts: 19
10 yr Member
Pinkyt177 Pinkyt177 is offline
Junior Member
 
Join Date: Feb 2011
Location: Central Illinois
Posts: 19
10 yr Member
Default New here and just wanted to say hi

I've been reading feverishly and thought I'd quit lurking and say hello. I'm newly diagnosed mainly because of my pride. I didn't want my doctors whom I know well to know that I couldn't exercise because I had such weak muscles. It's not like I didn't try but I would have to stop after 25 feet and rest. then I thought I had heart failure when I couldn't catch my breath and I didn't want to tell them that either. So, finally, I went to my neuro after taking a 11 day Disney vacation and coming back with severe exhaustion, drooping eyelids, not able to hold my head and arms up and he said, hmmm I wonder if you have MG? So now, I know!

Here is my question do you all work, I'm trying to pursue some accomodations to keep working mainly I want to work from home every other day but, I don't know what's going to happen. I have yet to work a full 5 day work week since the first of December.

Thanks for all of your wonderful posts and advice.

Pinky
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