IVIG Question

pingpongman · 02-23-2011, 09:26 AM

Has anyone here had IVIG treatments and it had no effect what so ever? I go today for my 5th treatment and so far no results.
Mike

pjlla · 02-23-2011, 09:42 AM

Quote:

Originally Posted by pingpongman

Has anyone here had IVIG treatments and it had no effect what so ever? I go today for my 5th treatment and so far no results.
Mike

I've done IVIG, the effects aren;t immediate, except for usually getting a headache but that can be remedied with advil or tylenol. For me, the effects were more noticable when my MG was worse. Now, I only really have ocular MG. It's not a cure, it's more of a bandaid to help your body get stronger and hopefully stay there.

pingpongman · 02-23-2011, 09:52 AM

So you don't notice any change until some time after the treatments are complete? I guess the effect is different for each person.
Thanks
Mike

tysondouglass · 02-23-2011, 01:54 PM

Hey mike- I've been getting ivig for 6-7 months continually now, and it varies when I start feeling the effects.

My specialist says that it usually takes a week- or 2 for the effects to start kicking in.

The purpose of ivig is to give others antibodies to bind against yours to destroy them- I believe and this all takes time.

Hope you start feeling it soon

brandonc · 02-23-2011, 05:29 PM

Quote:

Originally Posted by tysondouglass

Hey mike- I've been getting ivig for 6-7 months continually now, and it varies when I start feeling the effects.

My specialist says that it usually takes a week- or 2 for the effects to start kicking in.

The purpose of ivig is to give others antibodies to bind against yours to destroy them- I believe and this all takes time.

Hope you start feeling it soon

from what my doctor says, IVIG is pretty much designed just to flood your body with non specific antibodies so your immune system doesnt have to work so much....and in theory stop making as much of the bad antibodies that destroy the acetylcholene receptors.

catie · 02-23-2011, 09:40 PM

Quote:

Originally Posted by pingpongman

Has anyone here had IVIG treatments and it had no effect what so ever? I go today for my 5th treatment and so far no results.
Mike

I had IVIG several months ago, which amounted to five days in a row of IV therapy. I did see some improvement in my symptoms several days after the treatment was completed. Unfortunately, the improvement was somewhat short-lived. I have not received any additional treatments, partially due to the cost of the IVIG.

I'm keeping my fingers crossed that you see some improvement in the next week or two.

Cate

pingpongman · 02-24-2011, 07:55 AM

Thanks Cate
My doctor spread my treatments out over 3 weeks. I'm thinking he did that because of my age. He is hoping the IVIG treatments will help me until the Imuran kicks in. The mestinon I take only helps me maintain my current status and doesn't improve anything however if I miss a dose my symtoms get worse. At least you and Tyson give me a glimmer of hope.
Mike

Quote:

Originally Posted by catie

I had IVIG several months ago, which amounted to five days in a row of IV therapy. I did see some improvement in my symptoms several days after the treatment was completed. Unfortunately, the improvement was somewhat short-lived. I have not received any additional treatments, partially due to the cost of the IVIG.

I'm keeping my fingers crossed that you see some improvement in the next week or two.

Cate

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