Hey everyone,
I'm new here. I have MuSK+ refractory MG...meaning it does not want to be treated and is very stubborn! I'm on CellCept right now, have been for 10 years. Mestinon does nothing for me. I just tried Cyclosporine and felt like I was being poisoned. Stopped that yesterday and feel MUCH better. I've tried IVIG, didn't work for me. I was getting plasmapheresis every 3 weeks for the last 10 years. I don't have a port or fistula, so they used my veins. It's like it all of the sudden stopped working.

My neurologist suggested Prograf, but I'm allergic to azithromycin so I can't take it. My next step is Rituximab (Rituxan). Any suggestions of other treatments?
Thanks!
Kerri