I mentioned here I think that I was working the issue of why I still am not getting aid with showering. Get this!! After all the calls over at least a couple months and even calling the state governing body yesterday to explore reporting my agency it turns out it was there all along!

I dont know how many of you know the 'wordage' of agencies but here is the short explanation. It was written up last October when I started under HHA services. The bigger part of my services are under homemaker like groceries and laundry. When my worker Kara today got an angry call from the agency saying they were gonna stop my services on Monday, this was again discussed. She went to the folder with my written plan that has my carbonless copy and there it was! It has been there all along. 3 different nurses have signed it. The copy to it would be at their facility. So in all my calls how did this not get looked at?

But she then showed me her schedule which defines a visit as homemaker or HHA. She has never been given a sched with me for HHA time even tho I had involved around this asking is today the day we can start to shower.

I had left a message last nite with my DHS worker taking a stand on smelly me still getting no answer from these people. I said I need a new agency. I said I know they arent rated and I would like Comfort Care that has a good rating. She called my daughter to day and said yes.

HHA means home health aide.
Annie59

So frustrating, but you're making wonderful progress--finally! Here's hoping the new agency is different like night and day. It is so discouraging that the help you are supposed to be getting takes so much of your rare and precious energy to manage--like a Catch-22.

I am going to see a psychologist on Friday, for help in managing these big life-changes. The irony is that the reason I'm going is that I'm doing so well. When I was doing worse, I wasn't up to getting myself the help I needed. So, I can really only get help when I don't need help. But I'm going anyway. Maybe I'll learn something I can use when I really do need it.

Abby

Oh yes I get that. I had just gotten into the best and really only choice for me for a chronic health issue therapist in my city. My old pastor said he was great and that was go for me. It was spring 09. When the heat of summer was on I had trouble with getting that hot, no AC in that car, getting there. With my symtoms worse by end of summer I had missed appointment from that I really had to stop or risk a flare from pushing. The next spring I was better from winter and on the POTS regime and more mestinon so I was gonna go back. I tried to catch up on all the dental work I am behind on and did my cataract and bam. The big flare in March hit. No more driving.

I so know it would be better to see him. Cant get to him. But lucky me I have a friend who is a therapist and my old part time therapist from years ago takes my calls as she knows what hard hard place this is.

One day I hope I am stable enough to see him again.

Annie59