Been months since I have posted here, I have been busy playing medical detective and getting to the bottom of my problems.
I finally have a diagnosis- Ehlers Danlos Syndrome that is confirmed and the treatment is starting to work well.
I wanted to post it here, because I had ALL the classic MG symptoms with this. My neuro was Certain I had MG, but all my tests ( including a single fiber emg) came back negative.
I had progressive muscle weakness.
I even had a short lived response to mestinon ( probably because it made the muscle contractions stronger before OD)

I then proceeded to test negative for MS, Brain tumors and most every neuro-muscular disorder.
I was on the brink of being classified as "somatization disorder" ( which can be a medical kiss of death, even though it is a real disorder), when I figured this out.

If you have muscle weakness and test negative for all neuro muscular disorders, find someone who is willing to consider connective tissue disorders and evaluate you.

It turns out that in some cases, your body will "protect" what it detects as an injury and "protecting" it with muscle weakness. If you are weak, you do not move as much. and the injury can heal. Unfortunately, in EDS this natural reaction is about the worst thing that can happen. Sitting down and "resting" because I was weak caused things to fall apart quickly.

What I was experiencing last fall was basically the equivalent of whole body severe tendonitis.

With proper treatment that started at the end of January, I have moved from constant pain ( at about an 8) with weakness to constant pain of about 2-3. And I have very high hopes of this continuing to reduce. I went from hardly able to walk from one side of the house to another to walking a little over a mile last thursday evening ( I needed to ice down afterward, but I did it...).

this may or may not apply to you, but wanted to let those of you who have tested negative or normal on neuro tests forever, but still have problems that there may be another area to look into it. Feel free to ask questions or I am trying to write and share about it here: http://rogueneuro.blogspot.com/ best of luck and blessings to you all.