[teelae]

I do have ONE MORE Question, if you guys can put up with me again- I have heard that MG usually settles in to your degree of severity within 2-3 years
. Do you all believe that?? Also, how long does MG take to progress usually. Some seem to have been diagnosed, but they say they can track certain symptoms back to when they were in their teens etc. Can progression really be that slow with some people and go from 0 to 100 within months for others?? Teelae

[Juanitad]

Like everything else about this disease - I think each person is different. I was diagnosed in 2000 and for the first 4-5 years, I took only Cellcept and Mestinon and continued to have a fairly normal life. In 2005, I had my first crisis and my thymectomy. I have had some good periods since then, but have gotten progressively weaker. I retired on disability in Nov 2010 because my breathing was so labored and my overall weakness progressed.

So for me, it took about 10 years from diagnosis to the point I couldn't work anymore, As I said, my belief is that it is personal to the individual.

Good luck with your journey!

[neutro]

The first MG symptoms suddenly appeared in May 2007 and were quickly dramatically increased by a medication strictly forbidden to MGer's and that prompted a quick DX...
Pred, Cellcept, Mestinon, PLEX gradually provided a return to an almost normal life until I relapsed in September 2009 and I'm still presently struggling, 13 mg/d Pred and PLEX once a month...
My neuro is pushing for a Rituximab trial but I'm still resisting...
Maurice.