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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Went to ER last nite. Got a very nice doctor, lots of fluids cause the dry had spiked again which brings on higher pain in face. Also got IV fentynel for pain and some drug supposed to counter nausea from drug. One or both of drug first dropped pain but then sent me into a far more miserable, painful dry than I had when I was admitted. As the dry escalalted fast the pain came back. I didnt know they were running fluids into me far slower than usual. The nurse was gonna unhook me from 2nd bag fluids and I jumped and said " oh no! please let me have it all! as I was still dryer and back in pain and knew it would help at least some. Nurse grumbled and said that this WAS and ER but did it anyway. After it all was in me I did feel less pain and less dry but I had drank 2 16oz bottles of water while I was there too.
The doc called my neuro as I asked for mestinon IM if possibel and told her that was the only thing that keep some fluids in me at this point. She called and her ordered it but there is none in my city at either hosp. Doc ordered me to see him called him and see him again this next week. I was also told to keep my appoitnment for fluids today still and they could give me more pain mediacation. She offered to give me morphine when pain when up again but I said no as throwing another drug into the mix could just make it worse as that is already what happened and has led me here. I forgot to tell her that I have hyperparathyroidism and that and Sjogrens are both things that increase risk of pancreatitis. I was sent home with stool dample kits. And they measured my urine. I peed out as much as I took in from the IVs when I was there. My electrolytes were normal when arrived. Moving this week so I will be away some from that. Hookups and all. I miss you all. Annie59 ![]() |
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