I've been on Disability since 2006... approved in 2009 and will probably be up for review next year.

How many are disabled due to MG? And how long have you been on SSDI?

Just curious

Not me, because I timed my MG very carefully . I just got finished coralling toddlers, and I only have a part-time job (5-10 hours a week) which I do from my home computer. I'm homeschooling four kids, but I can do that from the couch, and I have all these teenagers (scads of 'em) to do the housework.

If I had a full-time job outside the home, I don't see how I could do it.

Abby

It's great that you have quite a bit of help since you have teenagers Stellatum And also that your MG decided to come into your life at a time when your schedule wasn't as heavy. My husband helps out a lot for me and my son is now 15 and my daughter is 12. Sometimes they help and sometimes they are messier than when they were little ones! I'm getting extra needed rest from overdoing it this past weekend

I tried my best to keep working with MG. Worked for 10 years after diagnosis but finally realized that I just couldn't do it anymore. I always said that Social Security couldn't say that I didn't try! I went from Full-time in the office to reduced full-time in office to part-time in office to reduced full-time at home to part-time at home! Finally I accepted the fact that I just couldn't work at all and filed for SSDI. I mean if you can't work part-time from home, what's left?

Me. I fought and fought it. Mainly to keep the healthcare. The state disability did physical/mental reviews annually and couldn't understand why SSI kept denying me.

applied in 2006. Got denied and applied for benefits from the state. I didn't get approved until 2010 either. After my 2nd ALJ hearing (with the same judge) to award a BENCH decision. Can you believe that? One word in one of my eye Dr's note changed his mind.

I originally started with Ocular MG then to Generalized. Now it's Ocular still.

Diagnosed in 2000 and retired on disability in 2010. I have applied for SSDI and still waiting for a decision. However, my employer had great STD/LTD policies and I was approved without any delay. I'll let you know how it goes once I get a SSDI decision.