[Ken0710]

Hello everyone,
My name is Ken and I am new to this forum. I figured I would try it out. I have read several threads and it seems like there are many helpful people out there.
I am 27 years old have had issues for a very long time. My eye issues started when I was very young and although eye therapy made improvements, they have never been normal as far as movement and double vision. It became a bigger issue in 2005 as I was attempting to join the Army and they made it very hard for me to to get in.

At that time it only seemed to be eye issues and MG was never even brought up. After several deployments to Afghanistan I started having more and more trouble controlling my eye movements and double vision. I went to an Opthalmalogist who then sent me to UNC Chapel hill to see a Neuro-Opthalmalogist.
At first he suspected MG but a Neurologist here on base ruled it out after giving me an EMG and some other blood tests. They then suspectyed Chronic Progressive External Opthalmalpolegia (CPEO).

I was then sent to a Neuromuscular Disease specialist who insisted it was MG. I have been through EMG's, blood tests, a biopsy as well as waiting for genetic tests. My Emg's have showed weakness in several areas of my upper body (Neck, Arms, and Face). this helps explain why I get tired quickly, especially since the Army has us doing physical activities everyday.
My blood tests are all negative though to include the MUSK test. My doctor still insists on it being MG saying there are possibilites of the tests not coming back positive. The military is now waiting on my definate diagnosis of MG in order for them to medically discharge me.

I am taking 60 MG of prednisone daily but I beleive my doctor will be lowering that soon. It seems to be helping slightly but not sure. I was wondering if anyone has these similar issues mainly because I have read that a thymectomy is an option to help get rid of symptoms.

I also read though that if you have seronegative MG which it appears I am, the procedure does not work. Others say their doctors reccomend it anyway so I thought I'd ask others. I would really appreciate any information which can be provided. Thank you.
Ken