Got you there to Tyson. You have to look like death's door for most people to understand that you are sick. People like to see the sickness. It is frustrating and I don't know if anyone will ever understand. Sometimes I don't even understand. I went dancing one night. I rested some and then danced some. I love to dance. Did I pay dearly the next 2 days. I did. Then someone said to me, well if you can go dancing, I don't see why you can't do so and so. No use to even explain. Sometimes, I get so tired and am determine to do something I enjoy even though I suffer the consequences of it. The last time I danced, I vowed never to dance again. As I said, if a person can't see it, then they don't believe it. Take care and I hope things will work out for you.

Finding the right balance between activity and rest, pleasure and duty, is very hard for everyone in the modern competitive world. It is nearly impossible for someone with MG.

Those that don't understand your difficulties, are many times those that find it hard to balance their own life. They may not be ill, but many times they are very frustrated, because they feel they work too hard, don't have time to enjoy their life etc.