Is it worth asking my doctor about the reboot? My symptoms now are getting better as the ivig Is kicking in..I'm assuming she will say stay on imuran..but I want stuff done.. I want to be healthy...

I'm sure as you all get- continuing on from last post. But I just don't want to have come all this way for this appointment for her to say that after the emg. I'm not alright w the fluctuating days I have and I wanna go back to school.

Hope yu all are feelin good

Of course you should ask. IVIG is just a bandaid. The other drugs rarely afford us remissions. Reboots don't either, for that matter, but when you reach a certain point, you have to grab what you can. However, you must listen to your doctor's advice as she is your partner in all this.

If I hadn't done it, I would still be wondering "what if." Now I know if/when the symptoms come back, I will ask for it again, if not the total SCT.

Good luck.

Exactly..the prednisone was supposed to b band aid..the imuran works to some degree but I feel like it could be better and I'll take that if I can..

What exactly is the reboot called so I don't sound stupid while suggesting?

High dose cyclophosphamide or high dose cytoxan (same thing, just generic vs brand name for the drug). Johns Hopkins did extensive study of it. In fact, I emailed with the doctors there prior to my procedure.

I just had my emg done and the tech is like..they think you have mg...ok..this number should be in the negative...

I hope they don't say its inconclusive to me having it..what would
I have otherwise. Guess I'm at the right place for it..but also I'm on ivig pred and imuran..it makes sense I would be strong..

I'm about to go into the sfemg part..that was just the repetitive stimulation piece. I won't take what he says at all...just confused at this point.

I have never knew there was such a thing as a "reboot". What does it do for you?

The "reboot" is something new that's being tried in a few medical centers. Actually, it's only "new" to MG - it's essentially the same procedure used to do a bone marrow transplant for someone with leukemia. They harvest your bone marrow (I believe), you go through high-dose chemotherapy to completely kill your immune system, and then they reintroduce your bone marrow to rebuild your immune system, hopefully without the MG. Considering the risks associated with it, I think it's done more as a last resort for those who have tried everything else and had no success, instead of as a generally available treatment. I also understand that, even if it works initially, the MG can come back in the future, necessitating another "reboot" or treatment with other meds.