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Old 05-11-2011, 10:33 PM #1
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CowgirlUp CowgirlUp is offline
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10 yr Member
CowgirlUp CowgirlUp is offline
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Join Date: Dec 2009
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My Mood: Cytoxan, anyone?
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Default Cytoxan, anyone?

I'm about to start Cytoxan. Has anyone done this? Did it help? I've done IVIG, Cellcept, Tacrolimus (Prograf) and Mestinon with no joy, and am currently doing plasma pharesis once a week. We've tried to get Rituxan twice but my insurance won't pay fo it. Nothing has really helped much except the plasma pharesis, and my sx are slowly getting worse. I'm considered refractory now so we're trying the Cytoxan. I'm so frustrated because even though there is lots of info about the drug online, almost none of it is about its use with MG. Any info or comments about your experiences with it would be appreciated. I understand the side effects are pretty nasty so I want to know if you think the results were worth the side effects.

Thanks for reading.
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