Go Back   NeuroTalk Support Groups > >

Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

Cytoxan, anyone?

Reply
 
Thread Tools Display Modes
Old 05-11-2011, 11:33 PM   #1
CowgirlUp
Junior Member
 
CowgirlUp's Avatar
 
Join Date: Dec 2009
Location: San Diego, Ca
Posts: 45
My Mood: Cytoxan, anyone?
Default Cytoxan, anyone?

I'm about to start Cytoxan. Has anyone done this? Did it help? I've done IVIG, Cellcept, Tacrolimus (Prograf) and Mestinon with no joy, and am currently doing plasma pharesis once a week. We've tried to get Rituxan twice but my insurance won't pay fo it. Nothing has really helped much except the plasma pharesis, and my sx are slowly getting worse. I'm considered refractory now so we're trying the Cytoxan. I'm so frustrated because even though there is lots of info about the drug online, almost none of it is about its use with MG. Any info or comments about your experiences with it would be appreciated. I understand the side effects are pretty nasty so I want to know if you think the results were worth the side effects.

Thanks for reading.
__________________

MK

If you can't be a good example, you can at least be a terrible warning. Janet Evanovich

If you can't be brave, be determined, and you'll end up in the same place. Lisa Scottoline

That love is all there is, is all we know of love. Emily Dickinson
CowgirlUp is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Cytoxan, Novantrone, Imuran, oh my... barb02 Multiple Sclerosis 5 11-24-2008 08:18 PM
Cytoxan for MG? ibeeanurse Myasthenia Gravis 16 11-13-2007 11:11 PM


All times are GMT -5. The time now is 04:07 AM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.

Home - Top

Powered by vBulletin • Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2019 DragonByte Technologies Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2019 DragonByte Technologies Ltd.

All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy