Has anyone had Rituxan infusions and if you have can you tell me what effects you have had, good or bad! My neuro wants to possibly start me on Rituxan in a month and I need some feedback. Any feedback would be appreciated.
Thanks!!!

I wish someone had experience with that here. I sure don't. Are you really doing that badly? I'm sorry you've got to bring out the big guns. Maybe if you talk to some people who have had it for cancer treatments you might find more information. Sorry I couldn't help more. Take care.

Annie

I am waiting for approval from Anthem to start the Rituximab infusions. My neuro is giving me high hopes for much improvement from this. I know it's a new treatment for MG, but with all other treatment options not improving me...I'm ready for something new! Keeping my fingers crossed. I'll post if/when I start!

I don't have any experience with that treatment. I do remember my Neuro mentioning that to me a few years back before I started using IVIG. Was a little apprehensive when he mentioned it but we really didn't go into much detail because he wanted to try IVIG first. Adding IVIG to my treatment plan has helped me so I didn't need to try Rituxan.

I take it that both you and MrsVgz have tried everything else with no success? If I may ask what all have you tried?

If that is your next course of treatment then I'm praying that Rituxan will give you both the help that you need in taming the beast called MG

Shari

Thanks so much for each of your replies! I still have to meet with my neuro and discuss what direction he wants to go and what I want also. Thanks again for your input.

II've been anxious lately. Anthem Senior Health Advantage isn't wanting to approve the Rituximab infusions. My neuro is working so hard to pound them into submission that I'm quiet impressed with him and his office. It's nice to know that he truely cares about my health. Keeping my fingers crossed, my prayers prayed, and my hope alive. MG might control my muscle function, but it doesn't control my love of life!

Did you get the Rituxan? 3 neuros are telling me I should do this and I am scared to death. Hope you're well; thanks.

Im having to go through rituxan infusions right now for Wegnars syndrome, It just takes a very long time.
All it does to me is make me shiver but then again im younger side of the spectrum at 18.

Also my treatment is costing me nothing and no long drawn out approvals since the military doesnt drag its feet.

Thanks, Matt for replying. Hope you're doing okay! I'll dress warm for the infusion. I shiver if it's below 70 degrees anyhow, so I'll dress extra warm. Let me know how you're doing.

I am wondering if anyone has gotten the Rituxan yet and if it helped?? I have been having a lot of difficulties and this is my last option for help, since IVIG doesnt seem to work for me. Thanks for everyone posting their experiences. Nice to know I am not alone!!!