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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Junior Member
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Does anyone notice that they have a lisp? I've always had a small lisp with words like chair, eggs, nuts, dictionary.....It seems to be getting more prevalent and I'm wondering if, once again, it's due to MG.
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#2 | ||
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Senior Member
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Abby |
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#3 | ||
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Junior Member
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I have issues with speaking but i wouldnt call it a losp and i dont have certain words that are bad, it would be a period of time tht my speech would be slurred with a lower volume. Its the one thing that i cant get completely over with all the medicine and ivig and all tht. its almost like when im exhaling to speak, whatever is in your throat tht controls airflow to your mouth or nose gets weak and I cant keep all of my air coming out of my mouth, some of it goes out my nose. It keeps me from making very much sense for at least half an hour so i can get a little bit of rest. This mainly only happens when having a long conversation or a speech.
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#4 | ||
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Junior Member
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Like brandonc I have never noticed a lisp per say but for years I would get tired talking and thought wow is that odd that I would feel worn out from talking or chewing! Rest usually allows me to bounce back but I still have periods that I must rest my voice or take more time chewing....
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#5 | ||
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New Member
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I've had this since 1984. The first symptom my sons listen for when I'm around is slurred speech. They pick it up before I notice it. Talking, eating, chewing are all tiring as jaw and tongue muscles are involved in MG. For me, this was the first symptom that I went to a doctor about - getting choked when I ate. Slurred speech means I need to rest for a while.
If the tongue muscle stops working (and it can), the food or liquid will simply roll off the back of the tongue into the wind pipe. I quickly learned to do the Heimlich maneuver on myself as I live alone. I also learned to eat slowly (as my mom used to tell me!) and pay attention to what I'm doing. I don't eat foods that require a lot of chewing unless I'm feeling really good. I also only go out to eat with my sons and their families - otherwise, I just drink tea or water when in other social situations that have food available. My situation may be more extreme than others because we're all different with our symptoms but it's something to be careful with. |
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#6 | ||
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Junior Member
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Got to go now. Thank you so much for sharing and making me feel like somebody else and not alone!!! ![]() Grace |
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