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Old 05-17-2011, 09:50 AM #1
Stellatum Stellatum is offline
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Stellatum Stellatum is offline
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Default just a nice success story

http://www.urmc.rochester.edu/news/s...ex.cfm?id=3202

I like to read stories of people with MG who actually got the right treatment and diagnosis right away! I didn't know that in children it's more common to be seronegative (the article says one half!). Also, it seems to suggest that a thymectomy makes more sense for young children.

Abby
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DesertFlower (05-25-2011), Juanitad (05-17-2011), pingpongman (05-17-2011)

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Old 06-14-2011, 02:09 PM #2
marie123 marie123 is offline
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marie123 marie123 is offline
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Default

I like to read stories of people with MG who actually got the right treatment and diagnosis right away! I didn't know that in children it's more common to be seronegative (the article says one half!). Also, it seems to suggest that a thymectomy makes more sense for young children.

Abby[/QUOTE]

I had a thymectomy young. Probably about age 7 or 8. I don't even remember. I haven't read this yet but I am going to. I don't know if this maybe have prolonged the inevitable at all but I've only had the problems with my eyes up until age 18 under severe stress I had weakness from head to toe.

I am back to relatively full strength now. But I am terrified of an eye surgery. I have severe ptosis on one eye and my eyes are turned in. I've lived with this for so long I figure why get the surgery? I can't have the surgery to lift my lid because he's scared that it'll dry out my eye :/ that is the main one I wanted to get done.
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