Does anyone else have hyporeflexia? You know when neurologists tap on your arms and your knees to see if they have reflexes? Like when they tap your knee and your lower leg "pops" forward? Well, I have no reflexes in my arms. I haven't since at least 2006 though I don't recall anyone testing those responses before then. Just wondering if anyone else has that. There's not a lot of info out there and my doctors are useless on the subject.

Annie

One of the few resources on this.

http://books.google.com/books?id=iDC...mptoms&f=false

I've had this too but it's not consistent. In the last 10 years there have been times when I had no reflex reaction in my legs (knees and maybe ankles) but fine everywhere else. I have no idea why and there was never an explanation.

Hi Annie,

My reflexes are like Sues. Sometimes when they tap my ankle I kick them in the face - by accident! Although I admit there are a few I would like to do it on purpose to! Other times they get no response at all.

My sisters reflexes however are always absent and she has never received an explanation as to why they are absent. I have a friend in Australia who also has an absence of response when her reflexes are tested.

Sorry I can't help more

Rach

Thanks, guys. I imagine it's either from the longstanding MG and/or my B12 deficiency. Who knows. Guess I'll just have to live with it. I always like to know "why" something is happening. Oh well.

I'm sorry you both have to deal with this too. Doesn't make grasping things very easy.

Annie

Hi Annie,

Sorry I didn't respond sooner. This has happened to me and my neuro commented that she focused on the symmetry of the reflex response as much as - if not more so - than the quality of the response. Anyway, when my left patellar responded adequately - and my right didn't respond AT ALL (after many attempts even), she went back to my chart. The comment was:

Well, you don't have pernicious anemia...and your blood work shows no indication of thyroid issues....so we're going to attribute this to PN. And with that we talked again about the importance of (one of your favorites)....sublingual B12!!

Thanks, Sue! I needed that.

My reflexes are equally nonexistent! So I guess, according to your neuro, that's a good thing.

I'm not going to worry about it.

You know, Rose - who was on the forum a long time but now isn't - was an incredible resource on the topic of B12. I miss her. I wish I could remember the book she cited about how B12 is not making it into "the food chain" anymore. Cows, for example, are being found to not have it in their bodies either (most B12 is from meat). That's why vegetarians need to supplement with it. And now so many other people.

Annie....I hope you don't mind my "hijacking" your post. I saw a post you made earlier this year, and wanted to get in touch with you. We are in the process of diagnosing my son (15). It has been long and very very slow. In a prior post this year, someone was discussing limb-girdle, and you mentioned CMS and testing for it.

My son has had a positive EMG during RNS. Acetylcholine was negative. We're waiting for MuSK results, and they are also checking Carnitine and Acetylcarnitine. In the meantime, Neuro (who does not communicate much or well) referred us to UC Davis. The other option we're looking at is trying to get him to into Mayo. Both of these were the options you mentioned in your earlier post in reference to CMS. You seem to be very knowledgeable/experienced and I am grasping at straws trying to help my son. Any advice?

I actually do mind when people don't stay "on topic," sorry.

I started a separate post for you, mainly so that others can see it and help you too.

Annie

So very sorry.

Thanks, Sdmama. I'm not angry. I like to respect everyone's need to have appropriate info. Yours too!!!