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Old 03-11-2007, 09:37 PM #1
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ok now I am really getting down, I go tomorrow for the tunneled catheter I really need the pheresis not only is breathing a problem but my legs are also so weak that I fell today right on my face and broke my nose I hate this MG . I hope that they do the tunneled catheter in the morning the cause the ER doctor said that they may want to reschedule for another day cause the nose is completely swollen
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Old 03-12-2007, 09:18 PM #2
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You poor baby!!! Well, maybe that is all of the things that are going to go wrong. Let's hope so, anyway. Do, please, post as soon as you can and let us know if they were able to put the tunneled catheter in. I know you can't wait for the pheresis.
I'm so afraid of falling myself. With my osteoporosis, I'd break a bone for sure. But you know, since going gluten free, the fatigue is back to my normal, manageable level. Take care, here's hoping the best for you tomorrow.
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Old 03-15-2007, 07:57 AM #3
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Hey there, I"m so sorry you've been going through the mill lately. It seems to be in the air with many people going through bad times with their bodies. Personally, I feel like it's my full time job to fight with my body .
Any ways, I've been praying for you.
Love Lizzie
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Old 03-15-2007, 01:12 PM #4
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thanks for all the support , i think your right it seems that everyone is going through so much lately i did have the tunneled catherter placed in my chest for some reason it keeps on bleeding the whole gauze is saturated they said that my platelet count is very high i really dont know what that means but they also said that if it keeps on bleeding they may have to remove it then that would mean that i will have to wait for the av fistular to mature and then no pheresis ,well i hope that everyone starts to feel a little better this MG is awful ,i will pray for everyone thanks again
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Old 03-15-2007, 02:30 PM #5
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Oh, no, can anything else possibly go wrong for you?!? Let's hope they get it under control, ASAP, and get you your pheresis. Know we're all rooting for you.
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