Hi all. I posted earlier about my 16 year old son. Last Saturday he had an "episode" where he was so weak he couldn't move his legs at all. End up in the hospital and he was admitted. This was actually a good thing...a great thing.

The attending neurologists (not neuromuscular specialists) think it's myasthenia gravis. My son's regular neuro is still convinced it's congenital myasthenic syndrome. The good part of being in the hospital is that they were able to do a CT of his thymus (negative) and insurance will now pay for a bunch of genetic testing that would not have been covered if he hadn't been inpatient.

They also started him on Mestinon (60mg 3x per day) BUT he was sick to his stomach (nauseous and vomitting) before he even started the meds, and then it just got worse because he had an empty stomach when he started the meds. They did make him stronger, though.

Because he was stronger, they sent us home, but we were on a vicious cycle with the nausea so he just stopped taking them (with the doc's ok).

We to into to see the Docs up at UC Davis mid July. They will be doing the specialized muscle biopsy, and then a consult. So I have a bunch of questions:

1) Any suggestions for dealing with stomach upset caused by the mestinon?
2) Have any of you had the specialized muscle biopsy (I guess it's combined with an EMG during the procedure)? If so, and advice about what to expect pain-wise and recovery. We will have a 3 hour flight home and I am trying to prepare to make it as easy as possible)
3) Any experience/recommendations about dealing with the docs at Davis?
4) Any experience/recommendations about staying in the UC Davis Medical Center area?

Any/all advice and/or recommendations are very much appreciated!