Southern Bell- the calcium thing is quite normal- happened to me more than half the 60 sessions that I did. Im glad the procedure went well!


Mike- Im going to answer that for her, and hopefully I hit the nail on the head....from all my previous experiences, it takes a few treatments to start feeling the benefit of the procedure, seems to be a little faster than IVIG, though. It does last a little shorter time span than IVIG, again from my own experience.

No immediate results. I'm sure it will take several treatments before you see any improvement. But in my case, no one can predict when or if I'll see any change because I have two autoimmune diseases (MG and SPS) and trust me everytime I tell someone that I have Stiff Person Syndrone they say "what".

I've read that getting SPS is one in a million (no kidding). It is a very rare disease so no one knows how to treat it or even if you can. Only hope the plasmaphreresis will help reduce the symptoms so that I can cut back on some of the drugs that I have to take just to get through the day. It will be interesting to see if I can see an approvement in just the MG. I can tell the difference in the two diseases as far as my body reaction/condition during any given day. And at this point (two years down the road) I'm almost willing to try anything that might have a positive effect and I know for sure that IVIG did nothing to change my symptoms.

Southern Bell

Stiff Person Syndrome is one of those diseases that reminds me how very much worse off I could be...I sure hope that the treatment works for you.

Abby

Hello everyone,

I had my second treatment yesterday and as with the first I had no problem what so ever. This time the nurse laid the recliner all the way back which was more comfortable - the first treatment the nurse only slightly reclined the chair. Once the procedure was over, I did have a light head feeling that I did not experience before which I contribute to the laying further back. I was weak when I finally got up (as before) but we prepare for that by utilizing my wheelchair to go to the unit.

I was weak for the remainder of the day, but today I feel pretty good. No real change in my MG/SPS symptoms, but again I think that will take some time.

My best to all,
Southern Bell

Southern Bell, I live near Atlanta also. I have only been diagnosed with MG since May this year and started IVIG infusions in June for 5 days, 3 days in july, and next week I will be getting 3 more days at Piedmont.

I was diagnosed with multiple sclerosis 10 years ago and nothing I tried for it worked so I may have both or just the MG as the symptoms overlap. Have you been on Mestinon? The neuro doesn't want me on predisone because I am also diabetic.

Hope this works for you and it's nice to find a MG website that is as active as this one.

Gabriella