FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
Reply |
|
Thread Tools | Display Modes |
07-24-2011, 02:28 PM | #1 | ||
|
|||
New Member
|
I want to look into the revimmune treatment. Is John Hopkins the only hospital that does this or are their others?
|
||
Reply With Quote |
07-24-2011, 04:45 PM | #2 | ||
|
|||
New Member
|
I have been accepted at Northwestern for a clinical trial for a stem cell transplant, just want to make sure that i'm making the best choice.
|
||
Reply With Quote |
07-24-2011, 08:41 PM | #3 | |||
|
||||
Member
|
Quote:
I am currently undergoing the application process and hope I really get in.. maybe I will see you there at some point! But Johns Hopkins will doubtfully do any type of reboot on you...i tried, you have to fail EVERY medicine, imuran, cellcept, mestinon, ivig, plasmapheresis, prednisone, etc...My specialist is @ johns hopkins thats the only reason why I know. (Dr. Corse) I think the stem cell trial is the best option |
|||
Reply With Quote |
07-27-2011, 08:51 AM | #4 | ||
|
|||
New Member
|
Good Luck with Northwestern, they are really great there.
I have failed prednisone, imuran, cellcept, cyclosporine A, Rituxan, IVIG, plasmapheresis and thymectomy. The stemcell transplant and Revimmune almost seem comparable except for the stem cell harvesting, just want to make sure I've researched all of my options. Thanks for responding. |
||
Reply With Quote |
07-27-2011, 05:57 PM | #5 | ||
|
|||
Grand Magnate
|
Kristy, I just wanted to say that I'm sorry the regular treatments aren't working. I really hope you have the best of outcomes with what you choose to do.
Annie |
||
Reply With Quote |
07-28-2011, 10:15 PM | #6 | ||
|
|||
New Member
|
Thank you for the happy thoughts and words of encouragement Annie.
|
||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Who to go to for RSD treatment? | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
Little known RSD treatment | Reflex Sympathetic Dystrophy (RSD and CRPS) | |||
HiCy/Revimmune at Johns Hopkins | Multiple Sclerosis | |||
HiCy/Revimmune... | Multiple Sclerosis |