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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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08-03-2011, 04:25 PM | #1 | ||
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Junior Member
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After prodding by my husband, I had a hearing test performed yesterday which showed mild-moderate sensorineural hearing loss. I will now need to wear hearing aids. Does anyone know if MG is related to hearing loss?
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08-03-2011, 05:14 PM | #2 | |||
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Member
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Quote:
possibly just a case of bad luck:/ |
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08-03-2011, 06:52 PM | #3 | ||
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Grand Magnate
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Celiac disease can cause hearing loss. Since people with autoimmune diseases can get more than one, think about whether or not you get sick after eating gluten (wheat, barley, rye, oats) and then get tested if you do. Did the ENT say what might've caused it? Did you see an ENT? That might be the next step if you didn't.
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08-03-2011, 07:14 PM | #4 | ||
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Junior Member
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I don't get sick after eating gluten, so it isn't celiac disease.
The ENT said that I had an unusual loss of hearing. I can hear high and low frequencies, but there is more loss in the middle. He thinks I may have been born with it and that it worsened with age (I'm 57). He is also going to retest my hearing in 3 months to make sure it isn't an autoimmune problem like lupus or RA (which I don't have). |
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08-03-2011, 08:30 PM | #5 | ||
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Grand Magnate
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Well, don't so easily discount anything, since celiac disease and lupus can have no apparent symptoms. A few blood tests might be reassuring.
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08-04-2011, 07:52 AM | #6 | ||
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Quote:
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08-05-2011, 03:51 PM | #7 | ||
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Member
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It is rare, but I have MG and severe hearing loss and wear hearing aids. They believe it is caused by autoimmune disease (MG). I am seronegative MG. You still have antibodies when you are seroneg, they are just ones they have yet to type and since acetylcholine is implicated....there you are. My neuro hadn't had a case of it either but it's not like MG is very common and when you add hearing loss it gets even more unlikely.
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08-18-2014, 09:13 AM | #8 | ||
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New Member
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There are several articles when you google on this issue. I woke up this morning with 100% hearing loss in my left ear. I can't hear even tapping on my outer ear or head on that side, nothing, nada. I have a Doc. appt. this afternoon. I am in a mild state of panic. :-) Here is one article I read this morning in pubmed.
Abstract OBJECTIVE: Acetyl choline (ACh) is the main neurotransmitter of the efferent auditory system. This study is aimed to evaluate cochlear function in myasthenia gravis (MG), a neuromuscular transmission disorder caused by ACh receptor autoantibodies. METHODS: This prospective study included 16 myasthenic patients, tested audiologically twice, first after improvement from myasthenic crisis or acute oropharyngeal dysfunction (1 week from admission) and then 2 months later. We detected the effect of contralateral acoustic stimulation (CAS) on patients' transient and distortion product otoacoustic emissions (TEOAE and DPOAE). RESULTS: Compared with controls, patients reported significant reduction in overall echo response and amplitude of TEOAEs at 1-2 kHz and at 1-6 kHz of DPOAE with marked reduction at 5 kHz. In the control group, CAS produced amplitude reduction in TEOAEs and DPOAEs at 1-4 kHz. Utilizing masking effect, patients reported amplitude reduction in TEOAEs at 1.5-4 kHz while DPOAEs did not reach significant level except at 1.5 and 5 kHz. After 2 months, no changes were observed compared with early assessment. CONCLUSIONS: It is clear that disease progression is associated with irreversible cochlear damage. Lack of improvement in patients' emissions despite partial non-audiometric improvement in relation to receptors needs to be considered. |
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08-19-2014, 09:50 AM | #9 | ||
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Junior Member
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Thanks for the research.
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