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Old 08-12-2011, 07:32 PM #1
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DesertFlower DesertFlower is offline
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Join Date: Aug 2009
Location: Tucson, AZ
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DesertFlower DesertFlower is offline
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Join Date: Aug 2009
Location: Tucson, AZ
Posts: 466
10 yr Member
Confused Mestinon & Blood Sugar

I have a question.

Does anyone know if Mestinon effects blood sugar levels?

I have a list of symptoms that occurs mostly after I take Mestinon, but it seems to be becoming more and more common, especially if I take Mestinon with a large amount of food

The most common thing is that my heart rate increases as well as my breathing and I feel nervous. After meals sometimes I get shaky. How bad these symptoms get are directly related to how much Mestinon I take. This has been happening for a long time now, right after I started to take Mestinon, but it seems to be getting worse recently. I am getting stressed for no reason, and my hunger is not functioning correctly...sometimes I won't get hungry all day and others I feel like I am starving and can't get enough food and I get all sorts of odd cravings. Occasionally I feel light headed, as if I am going to faint.

I can feel my body out of balance....and if I reduce the Mestinon to the lowest amount I can go to these symptoms are tolerable...and so I am recently suffering more weakness because it is preferable to these scary symptoms. I can't take them anymore, they are starting to make me feel crazy as well, as if my mind is thinking too fast for me to understand what I am thinking.

I am wondering if I am developing hyperglycemia or diabetes or something along those lines...but I am also worried that the Mestinon is the cause. I'm pretty sure it is.

I've talked to my neurologist about this on numerous occasions and he says it has nothing to do with the Mestinon. He doesn't seem to be concerned about these symptoms and focuses on things like double vision and strength, the MG symptoms.

It seems I am going to have to take a trip to my regular doctor, but first I wanted to know if anyone else has this effect. I'm trying to figure out how to explain why I want to go to the doctor. What should I ask them to test for if anything? How do I explain these strange symptoms? I have had so many bad experiences with doctors that for my own sanity I need to have something in mind before I can make an appointment. Should I request my blood sugar levels tested? Blood pressure? cholesteral? Or let the doctor decide?

Sorry for all the questions...the main thing is that I am wondering if anyone notices similar effects from taking Mestinon, or if anyone has blood sugar related problems as well as MG...

Thank you for listening.
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