OK, so my neuro is going to refer me to a physical therapist--he says he'll find one who has some understanding of MG. I am hoping the PT can help me understand what's causing me to walk so funny, and show me how to get around without doing any damage to my joints. I now have a very exaggerated limp, and I'm not sure why--it may be that my hip is weak and can't bear much weight.

Meanwhile, I am really having trouble getting around. It's not that I can't walk, and there's no pain (I am grateful for no pain). But even crossing a room is such a big production. Frustrating, since otherwise I feel pretty good, and I want to do stuff. This disease requires endless patience.

Abby

Abby;

Does using a rollator cause pain in your neck and shoulders?

Tony

Well, not the way I use it. I don't use my arms to support me at all--my arms are way too weak to do that. I either hold it very lightly just to keep my upper body balanced, or if my legs get so weak that I need help standing, I sort of drape myself over it. But mostly I use it when I go shopping in a department store, so I can sit down frequently.

Abby

Thank you so much for taking the trouble to write this. My knees are now swollen. It never would have occurred to me to connect this with the hyperextension if it hadn't been for your post, but I think that's exactly what's causing the problem. I am trying to get to a PT--waiting for the referral--and meanwhile trying to do what I can to go easy on my knees. Maybe the PT will give me braces, as someone else mentioned here.

Abby

You are welcome.

Ice the knees whenever you are sitting/resting. Try to stay off of your legs as much as possible.

Hope you see the PT soon.

Thanks. My husband, the Ice-Pack Man, is following me around with his ice pack. I had been avoiding it since I had to bring him to the ER for frost-bite after he over-did it on his sore shoulder a couple of weeks ago! So to placate me, he let me use a thick towel under it (he had put it on his bare skin). Anyway, I really can hardly walk without hyperextending my knees, so my neuro is sending me for some more IVIG.

Abby