FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
Reply |
|
Thread Tools | Display Modes |
08-20-2011, 11:42 AM | #11 | ||
|
|||
Senior Member
|
OK, so my neuro is going to refer me to a physical therapist--he says he'll find one who has some understanding of MG. I am hoping the PT can help me understand what's causing me to walk so funny, and show me how to get around without doing any damage to my joints. I now have a very exaggerated limp, and I'm not sure why--it may be that my hip is weak and can't bear much weight.
Meanwhile, I am really having trouble getting around. It's not that I can't walk, and there's no pain (I am grateful for no pain). But even crossing a room is such a big production. Frustrating, since otherwise I feel pretty good, and I want to do stuff. This disease requires endless patience. Abby |
||
Reply With Quote |
08-21-2011, 12:02 PM | #12 | ||
|
|||
Member
|
Abby;
Does using a rollator cause pain in your neck and shoulders? Tony |
||
Reply With Quote |
08-21-2011, 01:43 PM | #13 | ||
|
|||
Senior Member
|
Well, not the way I use it. I don't use my arms to support me at all--my arms are way too weak to do that. I either hold it very lightly just to keep my upper body balanced, or if my legs get so weak that I need help standing, I sort of drape myself over it. But mostly I use it when I go shopping in a department store, so I can sit down frequently.
Abby |
||
Reply With Quote |
08-24-2011, 11:12 AM | #14 | ||
|
|||
Senior Member
|
Quote:
Abby |
||
Reply With Quote |
08-24-2011, 12:31 PM | #15 | ||
|
|||
Member
|
You are welcome.
Ice the knees whenever you are sitting/resting. Try to stay off of your legs as much as possible. Hope you see the PT soon. |
||
Reply With Quote |
08-24-2011, 01:42 PM | #16 | ||
|
|||
Senior Member
|
Thanks. My husband, the Ice-Pack Man, is following me around with his ice pack. I had been avoiding it since I had to bring him to the ER for frost-bite after he over-did it on his sore shoulder a couple of weeks ago! So to placate me, he let me use a thick towel under it (he had put it on his bare skin). Anyway, I really can hardly walk without hyperextending my knees, so my neuro is sending me for some more IVIG.
Abby |
||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Does Anyone Have Pain Due To Gait? | Multiple Sclerosis | |||
Gait and Cognition | Parkinson's Disease | |||
gait disturbance before and after ACDF c5 c6 | Spinal Disorders & Back Pain | |||
DIY Gait training? | Parkinson's Disease | |||
Gait Freezing | Parkinson's Disease |