FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
Reply |
|
Thread Tools | Display Modes |
08-26-2011, 07:02 PM | #11 | ||
|
|||
Senior Member
|
By the way--they told me that my infusions would last from 1:00 to 5:00, which means I'm on the 4-hour schedule. So that's good. Thanks for the tip about calling ahead.
Abby |
||
Reply With Quote |
08-26-2011, 07:31 PM | #12 | |||
|
||||
Member
|
Mine were unmedicated and took 2 hours and 30 minutes.
Mike |
|||
Reply With Quote |
08-27-2011, 04:30 PM | #13 | ||
|
|||
Junior Member
|
I have always had mine at the infusion center at my neuro's office. I tend to get headaches from IVIG so I premedicate with a migraine med, tylenol and benadryl. I get 47g and infuse at a slow rate, 100, so it takes about 6 hours total. I'd rather be there longer than deal with the headache so I don't mind. My insurance company offered home infusions but it would cost me my out of pocket maximum so I declined. Having it at the infusion center just costs me a co-pay just like an office visit. I take snacks too and something to read, listen to or watch.
|
||
Reply With Quote |
"Thanks for this!" says: | Stellatum (08-27-2011) |
09-01-2011, 01:13 PM | #14 | ||
|
|||
Senior Member
|
Hi, everyone. Checking in from the infusion center. I'm glad the insurance company insisted I do it here, because we still have no power at home! We lost power during the storm on Sunday, and it's still out. Plus, there are fourteen, yes, fourteen kids at my house. And last but not least, if I weren't here at the infusion center, I would be totally out of touch, because we have no internet and no phone at home.
I had great IV sticks on Monday and Tuesday, but Wednesday was sort of a disaster. When they finally got it in, they told me to leave it in for Thursday and Friday, but last night it was really sore, so I bravely pulled it out. I decided I'd rather go through the sticking today than feel like a patient at home all evening, night, and morning. Today, I got a pretty good stick. So. No real side-effects. A few headaches, but ibuprofen takes care of them. Not stronger yet. Nice infusion center. Thanks for helping me know what to expect. Abby |
||
Reply With Quote |
09-02-2011, 06:58 AM | #15 | |||
|
||||
Member
|
Abby glad it went well. All of mine went the same. I did get a couple of small headaches but nothing bad. Twice when I did get a boost it was 5-6 days after the last treatment. Hope you get a boost in the next few days.
Mike |
|||
Reply With Quote |
"Thanks for this!" says: | Stellatum (09-02-2011) |
09-07-2011, 05:29 PM | #16 | ||
|
|||
Senior Member
|
I seem to be getting a boost from my IVIG already. Last time I waited two full weeks. This time it's only been five days. I am walking almost normally, and today I carried two mugs of coffee in my right hand--before, my fingers were too weak to carry even one by the handle.
I wonder why this one is working better than the last one (which I had in February). I suppose it could be that I've been on Imuran since April. Anyway, this is encouraging! I was just starting to think that the treatments aren't worth it, what with five days spent on the infusions, and the headache (which is now treatable with ibuprofen). I'm not an emergency case, since I don't have trouble breathing or swallowing. But we'll see how long this lasts me. It sure is nice to have some energy again. The cool weather may be helping me as well. Abby |
||
Reply With Quote |
09-07-2011, 09:12 PM | #17 | |||
|
||||
Member
|
Hope it stays with you. Out of 4 IVIG treatments I got 2 boosts and both have stayed with me but part of it may be the Imuran. Only time will tell. Thank goodness I can drive again but best of all is I can play ping-pong again.
Mike |
|||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
IVIG infusion at home? | Myasthenia Gravis | |||
IVIG infusion rate | Myasthenia Gravis | |||
At the infusion center | The Stumble Inn | |||
Cost of IVIG Infusion with Medicare | Myasthenia Gravis | |||
I had my first IVIG infusion today.......... | Peripheral Neuropathy |