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-   -   Questions about your experiences (https://www.neurotalk.org/myasthenia-gravis/156543-questions-experiences.html)

tysondouglass 10-16-2011 09:02 PM

Geode- I do have eyelid pain! I thought i was alone in this. When my eyelids and eyes get tired my right eye gets very painful and after napping, it gets better.

I was diagnosed with EMG x 5. I was tested @ UNC, DUKE, Johns Hopkins, Neuro office, and Northwestern, all with abnormal emg. I have never tested positive for antibodies.


I also have normal reflexes.

Geode 10-18-2011 11:20 PM

Eyelid pain
 
Thank you Jeatak, Erin, and Tyson for your comments about the eyelid pain. Doctors keep blowing me off if things are atypical, so it will be good to be able to say "It can happen, there are others....please check more thoroughly before deciding I don't have it."

Erin, yes, I LOVE the cold sodas on the eyelids. Great tip. Another great relief I've found is to ride in the passenger seat, close my eyes, and let the air conditioner blow directly on my eyelids. My best relief is "Headon" applied to my eyelids, but can't recommend this to others since it may be a carcinogen.


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