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Old 09-12-2011, 10:58 PM #1
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BARBARA356 BARBARA356 is offline
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BARBARA356 BARBARA356 is offline
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Join Date: Feb 2009
Location: SC
Posts: 86
15 yr Member
Default Need some help with Meds

Hi I was diagnosed with MG in 2008. My disease has progressed from eyes to all over. I can't hardly walk anymore. My feet swell up. They tell me I have tibial posterior dysfunction. But I think it is all muscle related. I am in feet braces and need a wheel chair if I go grocery shopping. The doctor has tried me on Imuran which had complications and had to be stopped. I am now on Methotrexate once weekly (3) 2.5 tabs. Prednisone 10 mg every other day and Mestinon time span. Mestinon seems to not work at all for me. I have a lot of responsibility on my shoulders. My whole family has health issues. Son has Cerebral Palsy, but can walk. Grandson has Severe Autism. Going on 11, nonverbal, and still not potty trained. And my husband has Epilepsy and is 61. My grandson just started having drop seizures 6 months ago, and seems medicine resistant. I feel like I am putting too much on my husband lately. I do not have the strength to wrestle my grandson to put on a pullup or stop him from running, or do the things I used to do. I can't even finish my dishes or clean the house anymore. The muscles are getting so weak I can't lift my arms to do the laundry, so I sit in a chair to take clothes out of the dryer. I feel so needy, and I don't want to be. I am the caretaker usually not the one being taken care of. My husband looks bewildered and scared., Frankly I am too. Today I could not talk hardly, my throat felt like it was closing up all day. This has happened before, but usually doesn't last this long. I asked my neuro about if there were any medications I haven't tried and he said he couldn't think of one right off hand. This is pretty discouraging. I don't have medical insurance and cannot afford the right treatment. I can't get the liquid gold treatment. I heard that is really expensive. Anybody got any ideas?
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