So far, nothing as not diagnosed. I started a new thread. I will ask for mestinon though if diagnosed. Thanks for the advise!

Thank God for you all!
 

Thank you very much for the information. My Neuro advised me to go on prednizone just this past Thursday. He kept advising me that my Mestinon is not lasting very long, I'm taking 11/2 that only last for about 3 hrs or less. So, he said I am better off taking prednizone on top of that. I had my doubts. So I told him, I'll think about it. Over the weekend, I was experimenting with my mestinon and went up to 2 every 4 hrs. It worked, aside from a little bit of stomach cramp. I was so happy, I called him and told him of the result. He said that he still recommends the pred as taking too much Mestinon is toxic. He said that I have to stay in the hospital for 3 days to be monitored. When I told him that I can't just take off work just like that, he offered to do it as outpatient. I'm supposed to call him this Friday to see how the 2 tablets are working. I'm pretty sure, he will again suggest the prednizone. After reading what you guys went through. I know what I am going to tell him. I am forever grateful to you all!:grouphug:

Does anybody have positive experience on herbal meds or acupuncture treatment?

I've never heard of too much mestinon as being 'toxic'. I take 60mg q 2 hrs (waking hrs) and that's because I'm in a relapse right now, well, the last 4 yrs. Before that, I was on 60mg q 5-6 hrs. I started on prednisone in 2001 but only because I was having breathing problems. I desperately want to get off the stuff. CellCept didn't do the trick for me and now I'm hoping that I'm a candidate for the immune reboot procedure at Johns Hopkins. I'd suggest to your neuro about trying CellCept or Imuran before going prednisone.

Jennifer in Ontario

I've been taking Mestinon for years, and have never heard of it being toxic. Pehaps he was refering to the fact that one CAN overdose on Mestinon. the only real drawback I've noticed to mestinon is that over time your body can become adjusted to it, so that you need to up the dosage to get the same effect. I've found that coming off the Mestinon for a time, perhaps several days, lets you sort of re-set everything. Of course, with my relatively mild MG, I'm able to tolerate a couple of days without Mesty, where someone else probably couldn't.

I talked to my Neuro on Monday, and he still suggest taking prednisone. He's saying that it's better to take a small dosage now than wait until I become worse. My real problem right now is my speech, which does not really bother me that much, just annoying at times. People I talk to understand me fine, I rarely have to repeat myself when I talk to them, just very nasal. I'm torn and I would really appreciate any feeback. I don't want to take it because of the possible complications/side effects. On the other hand, would it be better to find out now how I will react to it, than wait till I don't respond to mestinon anymore then find out that prednisone doesn't work? I have one week to decide.

Help!

Three weeks after diagnosis of mg
 

I have just recently been diagnosed after presenting at A and E with heavy pressure on my chest like I was going to have a heart attack
Ecg was fine but o2 levels were low
Several weeks previous a girl who sits opposite me in the civil service in a call centre commented "do you you know by the end of the day your right eye is nearly closed each day.I thought you were having a stroke."
I checked it on the internet as ptosis of the eye a sign of of possible myasthenia gravis.
I had to go any way as an annual check to my opticions who immediately noticed the ptosis as I entered the room.
She gave me a letter for the gp
The Gp would have on the following tuesday following my entry to hospital on the friday night diagnosed mg from the blood tests.
The neuro saw me over the weekend and started me low dose prednisolone building to mgs a day by the time I left hospital after two weeks.
I have bone and stomach protection medicine to take with it .
With this I also was was started on mestinon 60mg every 8 hrs .
Before I left hospital I was doing some walking in the main hospital corridor and found the same heavness again.
Just last night I was late with the mestinon and the chest preesure returned and my throat felt as if it was closing until the mestinon kicked in after twenty minutes and cleared it completely after an hour .
I guess my diaphram is my weak muscle in this case:winky:

60mg in the morning first thing
 

I checked again today the throat tickle starts aroung four hours fifteen minutes .
After taking mestinon recovery starts in about 20 minutes and is fully recovered within an hour .
Because I was not sleeping in hospital at night I rarely got even with a sleeping tablet more than four hours sleep.
Now feeling I cannot afford to be asleep now more than four hours .
I am going to GP open surgery first thing in the morning.
At four hours fifteen today while I was doing my one task for the day in local store at the cafe tickle started and I could not speak properly to the assistant .recovery as above .