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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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03-17-2007, 06:19 PM
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Hello my favorite Myasthenics...
 I was thinking that maybe we should each give our experiences and knowledge of this drug so that others can understand and help themin making the discision about using this treatment for their MG. When I was first put on Prednisone, it was literally at the Hospital after the Tensilon. There was no mention of Mestinon to me, just Prednisone. I really new nothing about it. Not until a couple of months after being on Prednisone did I realize that it was a dangerous drug. I kept finding articles titled..Prednisone..Good Guy-Bad Guy. That's when I started really reading. Truthfully, I was so bad off, that they could have offered me heroin in the hospital, I'd probably would have thought about it. I couldn't eat, lift a coffee mug etc. it was awful. I slept all the time. Now, Prednisone, made me stronger, I could eat, lift things, no more spilling hot coffee all over myself, I had many benefits from it......But I only seemed to get stronger to a certain point, and couldn't go any further. I had been warned by others of the bad side of Prednisone, but truthfully by that time my body was already addicted to it. Prednisone has caused me to have type 2 diabetes, weight gain/puffiness, moon face, I may be having adrenal problems because of it..jury is still out on that one, in the middle of fully finding out what is what with the kidneys. Once a person is on Prednisone, I think it's 7 days, your body needs it, as your adrenal glands shut down. Because the body normally make Prednisone, about 2.5 or around there. Anything higher is considered a massive dose. Once weaning off prednisone starts, it Has to be very slow to wake up the adrenal glands, and for a few, they don't wake up, and have to take small dosages of pred for the rest of their life. The less serious issues are, severe sweating, some crave food, and can't stop eating. I didn't get the horrible appetite problem that some get. If anything, for some reason, I went the opposite, no appetite, and when i do crave, it's for Tomato soup, or anything high in Potassium. The neuro I see at the MDA said he hates Prednisone, and really hates to prescribe it. he's the one who is weaning me off of it. So far so good. If you have any questions ask away, and please add, or correct anything I may have been mistaken on, or left out. love lizzie |
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| "Thanks for this!" says: | DesertFlower (11-02-2009), Nicknerd (11-07-2009) |
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