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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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09-18-2011, 08:24 AM
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Has anyone here gone on tacrolimus?
Starting on Monday |
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09-18-2011, 02:03 PM
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I did. It made my already bad symptoms much worse, and quickly, too. I only lasted a month on it, but it was a looooooooong month. LOL
That being said, I know of 2 people who personally had terrific results with it. The best thing about Prograf is you will know quickly, one way or another, if it will work for you. Just remember--no using ibuprofen and stay away from grapefruit juice as well. There may be a few other precautions you need to be aware of before starting. Good luck! |
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09-18-2011, 05:35 PM
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4eyes- does it really affect u that fast? my neuro said maybe 2 months for results. would be awesome if it worked. but, sorry it didn't work for you..
I'm going to Chicago tomorro for the consult w doctor Burt- stem cell transplant.. hope all goes well. |
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09-18-2011, 06:05 PM
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Yes, I did go "downhill" that fast. Whether it was something that was happening anyway, or the prograf, I am not 100% sure. I just know I was very sick within about 10 days and was off the prograf and back on cellcept by the end of that month and was back to my "regular bad" a few weeks later.
Good luck in Chicago! |
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09-18-2011, 06:26 PM
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JUST WANTED TO DROP BY AND SAY "GOOD LUCK" AND "I WILL BE PRAYING FOR YOU!"...........
PLEASE LET US KNOW HOW IT GOES! LOVE, ERIN 
__________________
Erin . |
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09-18-2011, 08:33 PM
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4eyes....hm thats crazy...why dont more people try it if it works/doesnt work so quickly? It seems to be more of a last resort drug...I have really never heard of it before my neuro suggesting it a few days ago.
Erin- thanks alot, i hope all goooes smoothly haha im too anxious to sleep! |
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09-19-2011, 02:50 AM
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Wisest Elder Ever
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This drug carries higher risks of serious side effects than Cellcept does: Including cancer. So doctors are going to save it for last if other less harmful drugs could potentially work instead.
http://en.wikipedia.org/wiki/Tacrolimus
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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09-19-2011, 08:04 AM
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Mrs D is right. It's a strong drug. I like Cellcept much better!
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09-19-2011, 05:30 PM
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Yep, my neuro advised me of all the side affects. As of now I am on Tacro, prednisone, and Imuran. Along with IVIG- will be until tacro starts working or we go along with the stem cell. Can you say immunosupresssed?!
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tacrolimus
Hi Tysondouglas!
Linear Mode
