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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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09-23-2011, 08:10 PM
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OK - MAYBE ONE OF YOU - OR MANY OF YOU CAN SOLVE THIS FOR FOR ME - WHY CAN'T WE JUST GET TRANSFUSIONS? I HAVE HAD TO HAVE A FEW AND I FELT AMAZING AFTER!
 I KNOW MY PORT WILL NOT SUPPORT IT, BUT WOULD BE WILLING TO GGO THROUGH IT AS LONG AS I FELT GREAT! ARE THE DANGERS HIGHER? DOES ANYONE KNOW WHY WE AREN'T TREATED WITH TRANSFUSIONS? LOVE! ERIN 
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Erin . |
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09-24-2011, 07:47 AM
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Hi, Erin. I was so glad to hear how far you've come!
My understanding is that blood is made up of red blood cells floating in a liquid called plasma. The antibodies that cause MG are also floating in the plasma. There's nothing wrong with our red blood cells, so there's no need to replace them--we can just replace the plasma. That's exactly what plasmapheresis does. I'm just deducing an answer from the things I know, but it makes sense, doesn't it? Abby |
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09-24-2011, 09:40 AM
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Erin, I agree with Stellatum and if you felt better after some blood transfusions, I think that you had other problems than MG...
I'm still on one PLEX every month and I can't think living without them! Take good care of yourself Maurice. |
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| "Thanks for this!" says: | tysondouglass (09-24-2011) |
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09-26-2011, 07:15 PM
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THANKS SO MUCH FOR THE ANSWER!
HOW R YOU FEELING TODAY! HUGS! ERIN Quote:
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Erin . |
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09-26-2011, 07:17 PM
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AS USUAL, YOU ARE RIGHT!
I WAS SO SICK AND SO ANEMIC THAT THEY HAD TO DO THAT GOOFY MARROW TEST ON ME....... YUCK!HOPE YOU ARE FEELING GREAT TODAY! LOVE! ERIN Quote:
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Erin . |
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