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Old 10-06-2011, 06:04 PM #11
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Be careful with the Flexeril. I took a 1/2 tablet during my diagnostic process when an opthalmologist said my DV was due to muscle spasm. I was stuck on the couch for 12 hours---very very weak.

Has your neuro been in touch?
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Old 10-06-2011, 08:22 PM #12
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Hi Tyson,
Throwing in my 2 cents worth here and hope it's worth more than that: we tend to look at where we've been when dealing with something "new." in this case are these brand new symptoms, or recurrence of something you've had before, as in do drugs upset your insides in general, or is this entirely new, is this explained on any drug inserts, is it related to food or when you took the drug, almost immediately for esophagus and stomach 8 hours for lower gut. Is there anything in the drug inserts that suggest a particular problem. Take a little life change, take a nasty drug, don't take enough water with it and you've got a set up for esophageal spasm that can feel just like a heart attack and it could be one too you know. So many of us have had such bad experiences with the medical profession that we depend on our own wits and knowledge, and that's sometimes necessary, but do plan for options, as in sit in the parking lot outside the hospital or get a friend over and have your ducks in order should you need to go in, so you can just hand one copy over of meds, of meds not to take, and a friend's favorite, "intubate for MG." (keep the other with you). It's about time for another attack according to your history these past few days, use this time to get ready, think what you need to do and what you are going to do. You can't be in charge if you don't know what to do. If it doesn't come what have you lost? People care about you. nc
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Old 10-07-2011, 02:05 AM #13
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Default A word of caution

This is an internet forum, so we can't do much more that provide emotional support, and give some very general advice, based on our personal experience and general knowledge.
Making definite statements regarding someone's condition can be dangerous.
As is giving definite medical advice.
Many serious and potentially life-endangering errors in medicine come from this arbitrary and non-existent division between the "body" and the "mind". Where exactly is that dividing line? and why do we need to look for it?
I have yet to see a patient with a physical problem that does not have an emotional response to it, and vice versa I have yet to see a person with emotional problems that does not have physical symptoms such as fast heart rate, sweating etc.
I recently had a young patient with a pulmonary embolism who was glad to think that she is just anxious when she found it harder and harder to breath. Her GP expected a "text-book" presentation, and did not consider this possibility in a young athletic woman. Fortunately, someone else did, and she arrived in the ER before it was too late.
And yes, I have also seen the opposite-a patient who instead of receiving reassurance had more and more needless tests.
A good physician knows when and how to provide emotional support, so that the anxiety of the patient does not mask the physical problem.
A less good physician makes a "mixed salad" from the physical problem, his and the patient's emotional response (yes, physicians have an emotional response to the patient and his/her illness too). Thus creating much more confusion.
We, as patients should find those physicians we can trust. those who see us as people with an illness and not just a tunnel vision of our physical illness. Those who can give us reassurance when we need it, without jeopardizing our physical needs.
This forum can only be an addition, but not a substitute for that.
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Old 10-07-2011, 08:18 PM #14
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Annie- I guess so..it does help with the headaches, i tried it. But it knocks me outt....
Ive only taken 3 pills, but it hasnt effected my MG yet, i dont think, im always generally weak...

I agree, doesnt really matter whether it be tylenol or flexiril...idk.

He should have, and I asked him to do a CMP, MG, ALT, AST, etc....no go because he said i had them 2 weeks ago and they were normal.

I am level headed, ill go in if i really need to. Thanks annie
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Old 10-07-2011, 08:19 PM #15
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4eyes- Ive taken a few of them, hasnt made me drastically worse..just more weak.
I am in constant almost every week contact with my neuro...
she upped my dose to 3mg 2 times a day of tacro
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Old 10-07-2011, 08:37 PM #16
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Alice and nightcrawler, i am much too drained to respond to those posts i will try tomorrow.


Thanks for your replies, just wanted to let you know I was not ignoring.
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Old 10-07-2011, 08:52 PM #17
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Hope that tomorrow you will be feeling so much better, that you will be too busy to respond, to mine anyway. It was just a caution that we have to do more than hope we won't get worse. As a friend said, we can all be Cleopatra, Queen of Denial, and even some of us old folks haven't lived long enough to learn our lesson. nc
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