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Nightmares, insomnia, night sweats, temp of 95.9, wanting to jump out of my skin, heartburn..,could this be the prograf? prednisone? this is the 3rd night with these, tonight much worse that the others.

I'm concerned w the temp, not sure what that's about usually I'm 98.


Ive told my neuro, waiting for a response.

Tyson, I don't know what's more disturbing . . . that I'm up at this time of night or that you aren't in the ER after THREE nights of this.

You have hypothermia. It's dangerous. Technically, they say 95 degrees but that hardly matters. You are not well. Do you want to wait until things get worse? You're obviously having a damn serious reaction. You have to go in NOW. Please trust me on this.

Your neurologist can't do anything for you. Only an ER can. Just suck it up and go in. Please. I hope you'll be ok.


Annie

Hi, Tyson, just chiming in to second what Annie said. Your symptoms are alarming.

Annie, I hope you're OK. I know you've been going through a very hard time. I noticed you haven't been around, and I've been concerned about you.

Abby

I did not go in, surprised? I have an app w my pc. in 8 hours. will make him order bloodwork xrays and ct scan.

I had an attack tonight where i was almost on the floor crying due to pain in my stomach and Chest. It went away now is just a headache.

i am done with tacrolimus, told my neurologist, I tried but feel as this is the culprit.


goodnight.

Tyson, I don't know if you're allergic to the ER or what keeps you from going in. Stopping cold turkey may hurt you too. And whatever started this "process" of symptoms can be beyond the point of being able to "control" it. What if your kidneys and liver can't clear your body of all the toxins you're taking?

With all of the pain episodes you've had over the past couple of years, someone might want to check for any possible inflammatory diseases. Seriously.

Whatever you do, I hope you'll be ok.

Abby, Thanks but my life is simply busy.

Annie

Tyson,

I think you may need to consider psychological causes of these extreme symptoms, as you've had them repeatedly throughout your journey with MG. Stress and anxiety can culminate in symptoms which can mimic heart attacks and other pains, and I've noted that these "episodes" often coincide with times of great change in your life. Sometimes your body will loudly announce things that you do not want to think about or deal with yourself.

I would caution you to not repeatedly request CT scans, as the radiation used in them are many times that of a regular X-ray. Since you had thorough testing just 2 weeks ago, it is doubtful anything much would show now that wouldn't be apparent on blood testing.

There is absolutely no harm in sudeen discontinuation of Prograf. Hope you get some answers.