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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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11-10-2011, 09:14 PM | #11 | |||
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One thing I have come across. My nearest hospital is not able to handle a MG crisis. I have to travel 25 miles to get IVIG treatments but the hospital 3 minutes can't give that treatment. I suggest you check now to find out who can handle any problem you might have with MG.
Mike |
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11-10-2011, 11:11 PM | #12 | ||
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Good point to consider. BTW - does any one wear a med alert? I use to wear one for med allergies (which after all the reading I've been doing may actually not be allergies! - |
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11-10-2011, 11:22 PM | #13 | ||
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11-11-2011, 09:20 AM | #14 | ||
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I don't wear a med alert but I do have a wallet card that Dr. Nicolle put together for the Ontario MG chapter. It has instructions to the doctor and a list of drugs that can worsen a MG crisis. It also has a spot for your Neuro's contact info and your GP's contact info.
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11-11-2011, 11:48 AM | #15 | |||
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....instead of the trots, grammy here has the toots which happens to have my 5 year old grandson (who lives with me) in hysterical fits of laughter and trying to compete to see who can make the loudest sound! Ah well, I'd rather be giggling, laughing, tickling, and tooting away with him then sitting and wondering why I can't move to play with my little guy.... Air freshener is a cheap price to pay to be able to play with him again.....
LOL!!!!! |
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11-12-2011, 01:05 PM | #16 | ||
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Like you said - - small price to pay. I'm glad you are responding so well to the Mestinon. Nice to have some 'staying power' again, huh?
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11-14-2011, 08:04 PM | #17 | ||
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I love your sense of humor about the tooting! It made me crack up when I read your post. Laughter sometimes is the best medicene. At least it makes you feel good for the moment anyway Shari |
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