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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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| Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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11-08-2011, 11:29 AM
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DO ANY OF YOU HAVE AWFUL, GUT WRENCHING PAIN IN YOUR LEGS AND BACK? I MEAN SO BAD THAT YOUR MUSCLES LOOK LIKE SOMETHING OUT OF "ALIEN"? YOU CAN SEE THEM MOVE AROUND?
I'VE BEEN TO THE ER MORE TIMES THAN I'D LIKE WITH THESE PAINS AND JUST FOUND A GROUP OF PEOPLE WITH MG THAT HAVE THE SAME PROBLEMS!!!!!!!! WAS RECENLTY DX'ED WITH CRAMP FASCULATION SYNDROME........THOUGHT I WAS CRAZY, AS NOTHING HELPED WITH THE PAIN AND MY BLOOD WORK CAME BACK - AND MUSCLE BIOPSY CAME BACK - NORMAL..... ANOTHER NEURO DISORDER. THO I DON'T KNOW MUCH ABOUT IT...... MG JUST SUX....THIS MAKES MG, BRITTLE BONE AND NOW CFS......DON'T KNOW ABOUT YOU GUYS, BUT I AM GETTING MIGHTY TIRED OF HURTING.... HOPE THIS POST FINDS YOU IN BETTER SPIRITS!!!!! READ 4-EYES REPORT ON REMISSION AND THAT MADE MY DAY! HGS! ERIN  P.S. IF YOU DO HAVE CONSTANT CHARLIE HORSE PAINS AND CAN SEE YOUR MUSCLES MOVING, YOU MAY WANT TO ASK YOUR DR ABOUT IT......
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Erin . |
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