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Old 11-21-2011, 01:19 PM #1
Ravenred Ravenred is offline
Junior Member
 
Join Date: Nov 2011
Location: Northern IL
Posts: 31
10 yr Member
Ravenred Ravenred is offline
Junior Member
 
Join Date: Nov 2011
Location: Northern IL
Posts: 31
10 yr Member
Default Mestinon crash

Hi everyone! BTW: if no one has told you all - you are a fantastic group of peeps!

I realize I haven't been on the Mestinon very long (newly dx) / on for 10 days - and when it's working I feel FANTABULOUS (hehe) and can usually do just about anything I want/need to as long as I don't get silly about it (I've officially declared my super-woman cape to be out to the cleaners to my family...

BUT I can also tell you within 20 minutes of when it is out of my system / wearing off - I "crash" and hard - and the symptoms are actually worse than when I started the Mestinon - I'm now choking (twice this week and on bread!), drooling (hey I thought I had a few more years before I needed a bib again!), and sometime (evenings more so than day) struggle to take a breath not to mention that a professional couch potato has nothing on me as I can barely move until about 20- 30 minutes after I get the next dose down (which was fun last night as I couldn't get the bottle open and no one was home....

Is this the MG getting worse / progressing and the Mestinon just masking it? Does it get worse this fast????

I started keeping a log and can see a pattern that it (the Mestinon) appears to last about 4.5 hours before I turn into an MG pumpkin.... but the neuro is on Turkey vacation till next week so I'm very leary about bumping it up but this rollercoaster ride is really starting to get to me already....
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