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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Senior Member
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Hi, folks. I seem to be crashing here. I couldn't get off the couch without help last night, and I've been on the floor once already today, and it's only morning.
I've been on Imuran for eight months now. No improvement yet. I could go in for more infusions, but man oh man that is logistically difficult. I need people to drive me to the infusion center and pick me up, and people to watch my little boys while I'm gone. I'm also afraid of aseptic meningitis, and last time I had a headache for a month. And it will only make me strong for six weeks. My insurance won't pay for home infusions. I'm grateful it covers IVIG at all--because I know very well there are people on this board who need it more than I do and can't get it. Maybe it's time to think about Prednisone. I'd appreciate suggestions. Abby |
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