well, i finished my ivig last night.. I felt PRETTY crumby with a pretty awful headache yesterday and i knew my spine hurt,low grade fever chills etc.. thought it was all a "normal" part of IVIG.. and if it was going to make me better, its all well worth it! I ended up having the Lumbar puncture they wanted to do today, and it came back as meningitis.. elevated protein (unsure if related to the meningitis or not).. usually they said that meningitis will tell them if its likely viral (mostly lymphocytes) or bacterial (polys), and apparently mine was split likr 48/46% ugh.. soo I was supposed to leave tomorrow and go home, and try to be back at work this weekend.. but now I'm here for at least another two days on antibiotics until the culture comes back where they can 100% confirm its aseptic meningitis
Has anyone else been through this? I really am feeling better today than yesterday.. Though my fatigue and droopy eyelid did return this afternoon which made me sad.. One of my biggest upsets is that they are saying now I can never have IVIG again!! is that right from what yall have heard?? ugh..
So we still dont have a firm diagnosis for my issues- MANY tests pending.. and now I'm just hoping I can break out of here in time to be home for CHristmas.. I'm sad since my kids can't come visit me now - i'm in isolation and even though I"m pretty sure it's aseptic meningitis I don't want to risk their health.

Anyone been through this?? what did you do about the treatment afterwards? They are saying IVIG effects will hopefully last a few weeks and then we will discuss PE depending on my symptoms and test results etc

Also does anyone know if getting meningitis will make MG worse if that is what i have? They sent in respiratory to do lung function studes on me, I wasn't sure why, unless they are concerned that it could worsen the situation of course.. Good times!