violet, I am new here and this is my first reply so bear with me. When I had my loading dose of gammagard (only 2 days but I get 80 gms in one sitting) I came home and felt like I had been hit by a truck. I didn't know what to expect so I called my doc about it. He called me back a little while later.

He was very worried about me as my antistriated muscle antibodies were and are 61,000 and he just thought I was headed for trouble. I told him not to worry cause I was one of those people who gets knocked down even from good stress. Every time one of our kids got married I ended up with a flare and spent a couple of days in bed on cortisone. I thought it was from my allergies and asthma and so did my docs back then.

Anyway, my immunologist put me on a couple of days of prednisone to help get me through my bodies adjustment to the IVIG. I literally would have times when I had to cover up in my recliner and not move cause I felt to weak. I felt like I was going to slide through the floor into oblivion. It took me a few days before I felt stronger.

I would suggest that the doctor be called and informed of the reaction your daughter is having. He may want to medicate her with steroids or he may want to wait a few days. Just depends on what his thoughts and experience are. Ask him if he has ever had anyone get weak like this before. Good luck. stella

Do you continue to do ivig forever????

In my case yes. At least until Cellcept kicks in if ever. Everyones treatment is different. I have been getting IVIG for over a year.
Mike